tag:blogger.com,1999:blog-3500936220214961312.comments2023-10-02T04:06:53.185-04:00Brass and Ivory: Life with MS and RALisa Emrichhttp://www.blogger.com/profile/10862232056342347990noreply@blogger.comBlogger3815125tag:blogger.com,1999:blog-3500936220214961312.post-27211090082507184742020-07-06T05:22:20.105-04:002020-07-06T05:22:20.105-04:00Can this be shared on our daily information site?Can this be shared on our <a href="https://daily4mative.com" rel="nofollow">daily information site</a>?Hashlers https://www.blogger.com/profile/01725876935539754211noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-77038764377980226892020-06-30T21:53:42.399-04:002020-06-30T21:53:42.399-04:00☑️☑️COMPOSITE CYBER SECURITY SPECIALISTS ☑️☑️
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Contact us!<br />🔘All Rights Reserved ®️.<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-13180977863114528812017-12-04T05:47:21.650-05:002017-12-04T05:47:21.650-05:00good postgood postJesseHansonhttps://www.blogger.com/profile/02817071923522330167noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-23746319844140357132017-11-08T10:46:20.550-05:002017-11-08T10:46:20.550-05:00good postgood postJesseHansonhttps://www.blogger.com/profile/02817071923522330167noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-53469493618704754802017-08-11T04:14:05.016-04:002017-08-11T04:14:05.016-04:00nice postnice postJimyhttps://www.blogger.com/profile/07349555226330578834noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-8168642013147002402017-08-11T02:38:06.962-04:002017-08-11T02:38:06.962-04:00I am new to MS world. Its been 5 months of taking ...I am new to MS world. Its been 5 months of taking Avonex every weekend. Once i missed my dose because i didnt had money to do payments for these expensive injections. I keep reading about MS. I have started believing that my health can be better without injection. Infact every weekend injection, followed by body pain, headache and fever leave me into some kind of physiological sadness. Everyone around me gets so panic, if i talk to stop taking injection. I feel its waste. These drugs are just money making machine. Anonymoushttps://www.blogger.com/profile/11829716633724182118noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-20607265769215601292017-08-09T02:04:20.643-04:002017-08-09T02:04:20.643-04:00nicenicewilliamhttps://www.blogger.com/profile/03516298684740765592noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-87422632245021856822017-06-05T18:29:25.665-04:002017-06-05T18:29:25.665-04:00You know being my own guinea pig I have found the ...You know being my own guinea pig I have found the same thing. Beginning to think that Western medicine is garbage. I've been on copaxone then tysabri then copaxone again. Still trying to find benefit. From time to time I've taken vacations From copaxone with no diffrenceMswarrior1https://www.blogger.com/profile/05875005434878164919noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-14929223314968130322017-06-04T07:57:39.664-04:002017-06-04T07:57:39.664-04:00Yes. That's a great description. I hope that y...Yes. That's a great description. I hope that your monster is staying hidden in the corners for quite some time.<br />-LisaLisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-88323938141453276502017-06-04T07:55:46.342-04:002017-06-04T07:55:46.342-04:00Welcome, Anu. You will find many great bloggers an...Welcome, Anu. You will find many great bloggers and kind people in this community.<br />-LisaLisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-91601461459272011892017-06-03T22:48:32.066-04:002017-06-03T22:48:32.066-04:00Lisa, I went from a broken foot to an MS diagnosis...Lisa, I went from a broken foot to an MS diagnosis - june 1, 2017<br />From twitter to blogs, I have expanded circle of reference and am reading and learning of the world which awaits me. Esp this disabled permit. I look forward to reading you...<br />VR, AnuradhaAnu Narasimhadevarahttps://www.blogger.com/profile/12086159172720039944noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-11654883448844946832017-05-22T13:36:26.674-04:002017-05-22T13:36:26.674-04:00Depression can be a subtle monster, fading into th...Depression can be a subtle monster, fading into the background, only to rear up when I least expect it.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-54610453980279834822016-09-27T22:20:57.529-04:002016-09-27T22:20:57.529-04:00Thank you so much for posting this. I went to uni ...Thank you so much for posting this. I went to uni very late at 26. I wasn't worried about meeting "tge one" or having children. I met someone special at diagnosis when I was 31. He left me, couldn't cope with the depression and mood swings. So I am now 47. I don't have children which I continiously grieve over. I don't have anyone special either. But I have my dogs and a few varied hobbies. I'm not totally content but I am happy. Thank you for writing about being childless.Seti_Monsterhttps://www.blogger.com/profile/00789194690614509184noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-80693126594659182492016-09-08T10:53:39.735-04:002016-09-08T10:53:39.735-04:00Hi Lisa,
Glad to see you are still busy blogging....Hi Lisa,<br /><br />Glad to see you are still busy blogging. I am just validating my own out-bound links, one of which was to you.<br /><br />regards<br /><br />Stephen WalkerDipsy Tripsyhttps://www.blogger.com/profile/04581061358048160015noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-11460668247402395172016-08-28T18:20:16.249-04:002016-08-28T18:20:16.249-04:00YEPYEPDiane J Standifordhttps://www.blogger.com/profile/11862850657925658079noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-59771263939655733672016-07-23T19:51:28.546-04:002016-07-23T19:51:28.546-04:00Hi Morgan,
Very nice to meet you. There seem to be...Hi Morgan,<br />Very nice to meet you. There seem to be more and more of us living with both MS and RA. I'm sorry that it has changed your life so much. I haven't been posting on my blog so much lately, but you are very welcome to follow and reach out in either of the HealthCentral.com or MultipleSclerosis.net or RheumatoidArthritis.net communities. Here are links to some of our Facebook pages: https://www.facebook.com/MSHealthCentral/, https://www.facebook.com/MultipleSclerosisDotNet/, https://www.facebook.com/RheumatoidArthritisDotNet/. Thank you for reaching out. <br />Lisa<br />Lisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-2222491363065809682016-07-23T19:19:25.803-04:002016-07-23T19:19:25.803-04:00This chain is older but you guys are the first I h...This chain is older but you guys are the first I have come upon with the multiples I have MS. RA. Fibro. Sjogruns <br />I am unable to work which meant a significant change in our lifestyle for my husband and me. It took a little over a year to get my insurance to pay up. <br /><br />I suffer from dramatic mood shifts anxiety and depression. I do t even recognize myself any longer and I feel very alone which was why I was so happy to find you. Hello. <br />MorganMorganhttps://www.blogger.com/profile/12478642043159241705noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-19998835117392960782016-06-23T00:17:22.349-04:002016-06-23T00:17:22.349-04:00Mouth sores have attacked me, Ive only been on MTX...Mouth sores have attacked me, Ive only been on MTX for one week in the same week I had a PET Scan so radiation, my mouth is filled and they keep coming, Ive received a Script for them, a mouth wash the folic acid, lysine, Ive taken it all and they just keep coming!!! Help Just mehttps://www.blogger.com/profile/15531242051401371546noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-18543470002726974292016-06-23T00:16:21.890-04:002016-06-23T00:16:21.890-04:00Mouth sores have attacked me, Ive only been on MTX...Mouth sores have attacked me, Ive only been on MTX for one week in the same week I had a PET Scan so radiation, my mouth is filled and they keep coming, Ive received a Script for them, a mouth wash the folic acid, lysine, Ive taken it all and they just keep coming!!! Help Just mehttps://www.blogger.com/profile/15531242051401371546noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-82776396102409630992016-05-06T08:11:45.529-04:002016-05-06T08:11:45.529-04:00Comment by: Stephen Walker
Hi Lisa,
You've r...Comment by: <a href="http://mymultiplesclerosis.co.uk/stephen-walker-old-man-ms/" rel="nofollow">Stephen Walker</a><br /><br />Hi Lisa,<br /><br />You've really been through the wringer with your early symptoms.<br /><br />Delighted you are doing better now. I keep hearing good things about ocrelizumab - here's hoping!Dipsy Tripsyhttps://www.blogger.com/profile/04581061358048160015noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-42446145778632022542016-03-25T20:57:36.010-04:002016-03-25T20:57:36.010-04:00EDS and MS http://www.ncbi.nlm.nih.gov/pmc/article...EDS and MS http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4449394/Donna Williamshttps://www.blogger.com/profile/14721505781157456080noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-52101833008789436052016-02-03T22:14:43.184-05:002016-02-03T22:14:43.184-05:00I experienced a stress fracture on my left ankle t...I experienced a stress fracture on my left ankle two years ago. This week I have a cracked bone in my right foot. I tripped last weekend and that is the results. I'm thankful that I can walk wearing a boot for 2 weeks.Anonymoushttps://www.blogger.com/profile/11241312518459662794noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-38427817486231289542015-11-04T07:41:55.222-05:002015-11-04T07:41:55.222-05:00Hi Elisabeth,
I'm sorry to hear of your broth...Hi Elisabeth,<br /><br />I'm sorry to hear of your brother's MS diagnosis. The first year was probably the hardest for me and others have similar experiences. So much to learn, especially with how your own body is going to response to the disease. It's tough on those who love us as well. Your brother could be inadvertently trying to spare the family the burden of dealing with the disease. <br /><br />With MS, it will be common to develop new lesions at some point. If they are active lesions and your brother is in a relapse, then his neurologist may recommend high-dose steroid treatment. Research has shown that starting a disease-modifying drug sooner (rather than delaying) is more beneficial in the long run. If he and his doctor haven't talked about this, then they should. <br /><br />I've read studies that indicate for males diagnosis at a younger age is associated with less severe disease progression. I don't know if this will be true for your brother, but it may provide some hope. <br /><br />What you may be able to do to help him and yourself is exactly what you're doing right now -- learning about the disease and reaching out to others to talk about your concerns. Let your brother know that you are available to him to talk or to help physically (if you are nearby). <br /><br />Just knowing that you care enough to learn something about what he's going through will mean a lot. I don't think that my brother ever mentioned to me that he looked up anything about MS when I was diagnosed. It didn't occur to me at the time because he was a new father and had a very busy life. But in looking back, it would have been nice knowing that he made an attempt to learn more and express love and concern. <br /><br />Please continue to reach out and feel free to let me you how you both are doing. <br /><br />Best,<br />Lisa<br />Lisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-91577433748803574982015-11-04T06:42:25.753-05:002015-11-04T06:42:25.753-05:00My youngest brother was diagnosed not too long ago...My youngest brother was diagnosed not too long ago. He doesn't communicate much, so I don't have a whole lot of info. I was just told that he has two new large lesions, one of which is in his brain. I feel so helpless and lost and scared for him. What is happening? And what can I do? Is this very aggressive? It seems to be happening so quickly. He is very young and already talks like he wants to give up. Thank you in advance for any thoughts or insight. Elisabethhttps://www.blogger.com/profile/03122380067858374936noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-6374007043452425162015-09-28T00:33:04.812-04:002015-09-28T00:33:04.812-04:00I have Ehlers-Danlos Syndrome, and when I was diag...I have Ehlers-Danlos Syndrome, and when I was diagnosed with Multiple Sclerosis in 2013, my neurologist told me that if you have EDS you're 15% more likely to have MS and visa-versa. She cited some studies that I wish I had written down. But, I mean, I was blind at the time and had several dislocations from an extended stay in the hospital. So. Anyway, it HAS been documented somewhere! :)Jennhttps://www.blogger.com/profile/16008824316690951147noreply@blogger.com